A Birmingham mum whose five-year-old daughter went from being happy and healthy to starting chemotherapy for Leukaemia in just one week has praised Newlife for providing a specialised wheelchair which stopped them being housebound \u2013 and gave her daughter the will to fight.<\/p>\n
A specialist wheelchair funded by Newlife The Charity for Disabled Children has allowed Darcie Nolan to remain as active as possible, go to school for a few hours a day and simply enjoy playing with friends during the most difficult stages of her treatment.<\/p>\n
Mum Lianne first thought Darcie had a virus when she became weepy and tired after the October half term last year, but she was also limping despite no injury. Three days later, when night\u2011time pain began waking her, Lianne and her husband David took her to A&E at Birmingham Children\u2019s Hospital. Although Darcie had happily skipped along a corridor, for her consultant, blood tests revealed a single blastoma \u2013 confirming she had cancer.<\/p>\n
\u201cDarcie started chemotherapy on the Friday, just one week after her first symptom,\u201d said Lianne. \u201cIt was heartbreaking, like everything was happening in slow motion yet so fast. She did amazingly well and, although we were told to expect a three\u2011to four\u2011week stay, she was discharged after nine days.<\/p>\n
\u201cAs a neonatal nurse practitioner, I knew the first treatment cycle can cause temporary loss of the use of her legs as well as hair loss, but it was devastating when Darcie said her legs \u2018wouldn\u2019t work anymore\u2019. Darcie had already had to stop Irish dancing, gymnastics and stage school as she was too weak, but without a wheelchair or buggy that was big enough for her we couldn\u2019t go out, and Darcie \u2013 usually a social butterfly \u2013 became withdrawn. It was awful.\u201d<\/p>\n
Renting a wheelchair would cost \u00a3100 per week but both parents had taken time off work to care for Darcie and Disability Living Allowance would take 25 weeks to assess. But a fellow school mum told her about Newlife, which not only provided a specialist wheelchair by the end of January but also arranged an equipment loan in time for Christmas so the family could still celebrate together.<\/p>\n
Newlife provides life-changing and life-saving equipment, including specialist buggies, wheelchairs, car seats and beds, for disabled children across the UK, but also offers loans of specialist toys, a nurse-run helpline and also campaigns to improve the future for disabled children.<\/p>\n
Darcie\u2019s treatment plan will last at least two years. Physiotherapy helps her walk on good days, though not far, and on bad days she relies entirely on the wheelchair, which now goes everywhere with her, including school.<\/p>\n
Lianne said: \u201cThe wheelchair from Newlife gave Darcie the will to fight. It helped her mental health, and ours too, because it meant we could go out again. When you are stuck at home reality feel miles away. The wheelchair isn\u2019t just helping her get around though, it\u2019s her safe space, it\u2019s where she goes to feel better when she feels wobbly.<\/p>\n
\u201cI wish more people new about Newlife, their process was so easy, and they helped when no one else would. When your bucket is full and you\u2019re struggling, when your mental capacity is at max, this is what you need.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"
A Birmingham mum whose five-year-old daughter went from being happy and healthy to starting chemotherapy for Leukaemia in just one week has praised Newlife The Charity for Disabled Children for providing a specialised wheelchair <\/p>\n","protected":false},"author":5,"featured_media":23642,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_lmt_disableupdate":"no","_lmt_disable":"no","footnotes":""},"categories":[1],"tags":[],"class_list":["post-23640","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"acf":[],"yoast_head":"\n